October brought more than gorgeous fall foliage and fruit harvest. Lily’s seizures had returned, though different than before and it was time to get some diagnostics on what was going on. We scheduled an EEG to figure it all out. A week later, we got a call from the technician who administered the test, informing us that all of the measurements taken had completely disappeared from their files. Wait, what?!! She said that, in her many years of employment, EEG results had only disappeared one other time. Lucky Lily, She got to go in twice, which is no small thing because it means having to deprive oneself of sleep before the test in order to induce seizures. She was a pretty awesome sport about it, thankfully.
Jack also got a pamidronate infusion during October. He was an absolute champ and barely whimpered when they inserted the IV needle. I couldn’t believe the change I saw in him and it was heartening to see him mature before my very eyes. That was the easy part, though. For three days I got to chase the active toddler around with an IV pole – not exactly a cake walk. At least he can now sit through an episode of Daniel Tiger’s Neighborhood without interruption. For once I am truly thankful for screen time.